Phoebe
Job Available To Start October In Twickenham
Female Member since Jan 2024 Last Updated Sep 2024 Last Login 27 Sep 2024
About Me
Hi my name is Phoebe and I am mum to the wonderful, sociable Elis. He is 16 months old and has had a challenging start to life. He is an absolute fighter and has managed to make it through some very difficult times. We knew about Elis' Downs Syndrome and heart condition before he was born. At 8 weeks old Elis needed to go into hospital for support with his growth in order to have his heart surgery. The surgery happened when he was 4 months old and didn't go to plan. After a long stint on life support (which resulted in bilateral strokes) and a further 2 and a half months in hospital we made it to the Children's Trust in Tadworth for 3 months of rehabilitation.
We made it home in February this year and have tried to make the most of our time at home. We have had a few more trips back to hospital, some planned, others not. Elis has regular contact with a physio therapist, Speech and Language, Occupational health as well as his specialist Drs. We have recently been able to join a number of classes in the local area and Elis is loving the music and singing and being able to see other little ones his own age.
We need someone to join our team looking after Elis. I will be staying home and my husband will be working long hours either at home or in the office.
My Requirements
Elis has a PEG for feeding and administering medication. He is fed using a pump but is able to have some purees as tasters. Ideally we would like someone who is familiar with a PEG/Pump feeding but would be happy to offer training for the right person.
Elis needs a variety of therapies so we are looking for someone to attend those sessions with us and be able to apply what we learn at home.
We need someone Monday-Friday, a full time position with 42 hours a week. Hours will need to be flexible at times but we are getting a more of a regular schedule so things are becoming more predictable. We would like to be able travel within the UK to see family and would want our nanny to travel with us. This is definitely aspirational at the moment though!
As well as looking after Elis we would like support around the house, duties will include washing/sterilising equipment for Elis, washing, some cleaning (although we have a weekly cleaner) etc
Please ask me any questions.
Mon | Tue | Wed | Thu | Fri | Sat | Sun | |
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Before School | no | no | no | no | no | no | no |
Morning | yes | yes | yes | yes | yes | no | no |
Afternoon | yes | yes | yes | yes | yes | no | no |
After School | yes | yes | yes | yes | yes | no | no |
Evening | yes | yes | yes | yes | yes | no | no |
Overnight | no | no | no | no | no | no | no |
Last Updated: 13/09/2024 |
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